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"Pain in the Neck": Two-Year-Old with Chronic Refractory Right Face/Neck Mixed LM with Episodic Swelling

Case Summary

  • HPI: 2 yo with chronic refractory right face/neck mixed LM with episodic swelling triggered by infection compromising airway
  • First surgical debulking
  • Rapid development of additional micro- and macrocysts--additional sclerotherapy
  • Adjuvant sirolimus oral therapy