Multidisciplinary Approaches to Vascular Anomalies Webinars

Moderators

Ann Kulungowski, MD, and Taizo Nakano, MD
Children's Hospital Colorado, Aurora, CO

Guest Presenter

Moderators

Ann Kulungowski, MD, and Taizo Nakano, MD
Children's Hospital Colorado, Aurora, CO

Guest Presenters

• 6yo F who presented in first year of life with right lateral leg staining
• Imaging at 2 yr of age demonstrated marginal vein

Treatment Options

• Patient progressed to syncopal episodes while wearing compression, likely due to large size of marginal vein

• 35yo F presents to CHCO VAC 11/2018
• Purple stain to right lateral thigh, RLE overgrowth, blebbing to foot, right buttock, groin
• Evaluated at multiple facilities throughout lifetime and received multiple diagnoses
• Has undergone several surgical excisions of bothersome “hemangiomas”

Moderators

Ann Kulungowski, M.D., and Taizo Nakano, M.D.
Children's Hospital Colorado, Aurora, CO

Expert Guest Panelists

Case Summary

• Infants born with chest wall masses
• No antenatal diagnoses
• Referred for evaluation
• Initiated multiple rounds of sclerotherapy
  • Macrocystic component

Case Summary

• HPI: 2 yo with chronic refractory right face/neck mixed LM with episodic swelling triggered by infection compromising airway
• First surgical debulking
• Rapid development of additional micro- and macrocysts--additional sclerotherapy
• Adjuvant sirolimus oral therapy

Case Summary

• HPI: Term infant with right face/neck vascular malformation
• Prenatal MRI showed transparent cystic mass
• Postnatal MRI showed mixed mirocystic and macrocystic lymphatic malformation

Case Summary

• 3 mo female presents to clinic to discuss a "hemangioma" present at birth.
• Klippel-Trenaunay Syndrome
  • Capillary Venolymphatic Malformation